Lily | September 2016
Lily has been diagnosed with chronic FPIES. However, doctors are still trying to determine everything that is happening in her little body to make her so sick. Her condition is complex and has lead to multiple emergency room visits and hospital stays just since Spring. Lily’s single mommy has unfortunately been unable to receive assistance elsewhere to feed Lily, has difficulty affording diapers and can’t afford the hotel stay she will need to visit specialists in New York.
Through The Fund, Lily has so far received diapers and 2 cases of formula. CMNuA was also instrumental in connecting Lily’s mom with other nonprofits that specialize in FPIES and some of the other conditions being considered as contributing to her ongoing serious medical issues. We have connected her with some of the top specialists in the country and she is scheduled to meet with them in early 2017. When Lily travels to meet with the specialist team, CMNuA will be covering the hotel stay for Lily and her mommy.
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